I don't know how I feel, and that is part of the problem. The concerns my DH has with the neuro are legitimate. The neuro told us both 3 weeks ago, that if the antibody test came back positive that it may be transient ones, and we'd look at that possibility when the results came back.

Then when we went to the appt yesterday, he said flat out that since I'd been on Ty for almost a year, that it wouldn't be transient, that only happens in the first 3-6 months. He always has to be told my drug history, he can't remember and it is faster for me to tell him that for him to go back through his notes. Maybe most neuros don't remember you from visit to visit, or that you are on one of his special drugs, Ty!

His nurse is awesome! I would really miss her because she does remember you and keep up with what is going on. The neuro is involved in a study for another drug, and maybe now his focus is changed.

Some of the problem is that my DH thinks MS can be wrapped up in a neat little box, always handled in a certain way. He thinks it is terrible that every year I get MRI results, and my meds change! He knows someone at work that has been on C for 5-6 years, has had a few flairs, is more disabled than me, and seems happy with his med. But of course this guy hasn't had an MRI in 8 years!

I told him, he could have 50 lesions, and he could have no more lesions. He wanted the neuro to tell him that if I was on this drug it was keeping me walking, it was keeping me from getting "that" lesion, or "this" one. I tried to explain to him that the drugs and the disease doesn't work that way, it is always a "crap" shoot. (Having played craps, I understand that term now!)

It just made for a bad night that I didn't need. Now I have a UTI this morning to deal with, feel like poop, am looking at going from a once a month infusion to daily shots. I know more is out there, and it will take time. I'm just not patient this morning.

I'll go do my 3 mile walking DVD and hopefully perk up. I still have work to go to, and so life goes on!