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Old 03-11-2009, 10:16 AM
mimichicago mimichicago is offline
Junior Member
 
Join Date: Dec 2008
Posts: 40
15 yr Member
mimichicago mimichicago is offline
Junior Member
 
Join Date: Dec 2008
Posts: 40
15 yr Member
Tongue crps: what helps besides drugs?

Hi, this is a somewhat edited re-post: I posted in the wrong place before.

I've had chronic left foot pain since 2001. It got worse over the years, as I lost more and more ability, and it took seven years and thirteen doctors to finally diagnose me. On the bright side, it's never spread beyond my foot, and I can still walk short distances (not too fast, though). When I flare up, about twice a year, I'm on crutches for 2-3 weeks till it calms down.
I've been losing ability rapidly lately--as of August, no more biking, as of November, no more dancing or standing longer than 5 minutes or so (no more concerts, no more getting onto a too-crowded bus), but my doctors seem to think that I can regain ability through physical therapy. I'm taking vitamins b, c, and d, as well as calcium (my left leg is atrophied from disuse), and I'm doing things like "scrubbing" and deep pressure for desensitization; meditation; and mat pilates and swimming to regain strength. Though it seems to be doing nothing but keeping me in a near-constant state of mild flare-up, I'm hopeful. Has anyone had any luck with any of these more holistic approaches? Can anyone recommend any other non-prescription-drug steps I can take? Massage, acupuncture, diet changes, etc.? Any recommended exercises for lower extremity CRPS? Thanks for any help you guys can give!
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