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Member
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Join Date: Jun 2007
Location: NJ
Posts: 228
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Member
Join Date: Jun 2007
Location: NJ
Posts: 228
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see-saw...
Or so it feels like it...
I was diagnosed with MG, then undiagnosed, now I just wanted to let you know that it is back! I have MG again, or at least tentatively.
Of course, it could just be depression, as that came up about 6 times. But I never knew that being said made a person choke. Or be weak in fact... the bed part I understand.
So he took blood for more *sensitive* tests and I am to go for all the swallowing tests and we shall see what comes of that.
I am anti-body free, and the rest of my tests are weird, just have a positive SFEMG. I just have symptoms. But my eyes are fine. Every doc differs on what this is or even is this is neuro.
Bad thing is that my pit tumor has decided to rear its ugly head again - my visual fields are impaired and my hormones have taken a dive. So I will be off for more for testing, MRIs and things - and I hope it can be resolved with surgery as I really really do not want radiation.
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
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