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Old 03-11-2009, 05:04 PM
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4boysmom 4boysmom is offline
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Join Date: Jan 2008
Location: Idaho
Posts: 164
15 yr Member
4boysmom 4boysmom is offline
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Join Date: Jan 2008
Location: Idaho
Posts: 164
15 yr Member
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I feel my neuro did a good job of explaining why he had treated the disease the way he has, but my DH can be stubborn! And once he's made up his mind that a person doesn't know what he's talking about, there is no changing that opinion.

He did take all of the C material with him today. I told him he was responsible for getting a shot rotation figured out, and understanding totally this drug. He says he knows that I have done my due diligence, but my sense is that he doesn't believe that totally. My sense is he thinks I've just followed what my neuro has suggested.

I don't know if any of you remember that I have had reaction to my Ty infusions. The first one went fine, then #2-8 I would get the chills, a headache, feel crappy from 5 minutes after the infusion stopped until about 30-40 minutes later. I'd go home and rest, and be fine the next day. My last 2 infusions were perfect! I had the infusion, felt fine afterward, even went to dinner and ballgames after feeling great!

The neuro said that indicated to him that I had developed the antibodies a couple of months ago, and that was why my SE went away! The drug was doing nothing for/to me. That makes sense, doesn't it?

My DH will soften. He says I shouldn't switch neuros on his account, that if I like him, that is fine. I think I was just hurt that it was a blow for me to have these antibodies, and instead of getting consolation from him, it ended up in an argument about how idiotic my neuro is!

Don't get me wrong. He is a very good, loving man that does his best to meet my needs and take care of me. I think he is just extremely frustrated that I have a disease he can't fix! He actually will be better now that he is giving injections again. I think it makes the disease more real for him. He kind of lost that while I was on Ty.
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