Member
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Join Date: Jan 2009
Location: Paradise
Posts: 855
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Member
Join Date: Jan 2009
Location: Paradise
Posts: 855
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Quote:
Originally Posted by MominPainRSD
Appropriate to your name, I have to question why they're messing with you so much right now if your meds are working and you're able to get plenty of exercise? ANYTHING they do can stir the pot and cause a disruption in the delicate balance of things and I would be cautious before I would proceed with much more testing.
I have RSD that started in my left foot in December and quickly spread to my right foot, to the bottoms of both feet (AFTER I quit having nerve blocks done) up both legs, and to my hands. I had an epidural nerve block a few weeks ago that triggered a MAJOR flare in me. I wish now I had just stuck to the sympathetic nerve blocks. It wasn't worth the "experiment" when things had been going ok (in retrospect, I wish I hadn't stopped having the SNB's so soon in the first place......it was containing the RSD until I quit......then it spread like crazy).
I guess my point is (or was, until I got sidetracked!!).....ask them seriously what they hope to gain by the test vs. the risk of causing a flare in you when you seem to have things under control at the moment.
I wish you well whichever route you choose and hope that you continue to remain as painfree as possible!!! We are glad to have you aboard, though sorry you need to be here!!
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Everyone is right on this issue. EMG's can sort of hurt depending on your pain threshold. NCV's don't hurt, but I did not like the several I have had because I don't like getting chased around the room with an electric cattle prod. Frankly, the last two EMG's were mostly painless because I have little feeling in my shoulder, much of my arm and hand due to surgically caused nerve damage (the reason for my CRPS) so I didn't feel the needles going in! I have also heard of others flaring from the procedure. Since the idea is to stop pain signals from reaching the spinal cord, perhaps talk to the neurologist pre-procedure about the idea of taking oral pain meds just before you go in.
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