
I've been a part of this group for the last four years. I came here unable to walk. Now I'm walking, back to work, even taking a Yoga class three times a week! I've lost 40 pounds and plan to lose 60 more.
I have my days, and my weeks. I know that if I don't keep stress in check, it will check me and put me in pain for a week or so. I've figured out I have about a 3 day delay in my cycles. If I "splurge", and push myself, it will hit me within 3 days.
My doctors did pretty much "nothing" for me except tell me I have Small Fiber Idiopathic Peripheral Neuropathy. Ran lots of tests on me and sent me home with lots of medications that made me unable to function at work. I lost my job and was even more depressed! This group taught me what I needed to get back on my feet. (Even after I fell a few times and tore my rotator cuff and couldn't use my right arm for 3 months!)
I followed Bob's diet advice.. (Wings 42) and I take Vitamin B supplements. I eat Spinach and Salmon three times a week. I hardly ever eat red meat... I put Flax seeds into my morning smoothies and have learned to say no to a lot of things I used to love. By taking control of my own life.... I've taken control of my disease! (I'm still sad that I can't wear a pair of red high heels!) At least I can walk now... and I couldn't say that 3 years ago!
The people on this board have not only helped me pull myself up with my Neuropathy, but also from the Depression that comes with being diagnosed with a disease!
Thank you all! And for you Newbies... there is hope.. don't give up! YOU have to be your own advocate!