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Old 03-12-2009, 07:06 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Gdbyrd, I don't know much about your history. What doctor told you that striational antibodies were specific to MG?

Patients with MG can have them, that's true. But patients with other diseases can have them as well. It's not an MG-specific antibody per se. And it often indicates, depending upon how high the titer, that a person MIGHT have a thymoma.

http://www.mayomedicallaboratories.c.../Overview/8746

http://www.ncbi.nlm.nih.gov/pubmed/15767509

Page down a little bit on this site:

http://neuromuscular.wustl.edu/mtime/mgthy.html

Do you feel that your neuro has been thorough in testing you? Have you had a SFEMG? Do you have ptosis, along with the double vision (I would imagine so)? I suppose I should not be so lazy and look through old posts!

I'm really sorry that you don't have answers. You have every right to call your neuro before your appt. and have a conversation about this. I hope you do just that. The diagnostic process can be so incredibly frustrating.

If you feel you need a 2nd opinion, then get one. If there is a possibility that you have a thymoma, then getting that taken care of soon is important. No, I'm not saying you have one! But if there is that possibility then someone ought to be doing more to find out.

Annie
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