i totally agree with karen.
like the touch thing. mine can go from not hurting to be touched to OMG dont get near me. like she said everyone is differnt this goes the same with treatments. like blocks working for one and not the other etc...my suggestion to you is that research and knowing what is goin on with your body is key to this diease or any other diease in my opioin beause dr's sometimes just want you as a geunie pig and thats not so good at all for us

i hope that this info helps
carrie