13 years old and already slaying dragons and baffling doctors. I am so sorry your family is going through this. You have faced my biggest fear. That is the one thing that I am absolutely terrified of, that my daughter might inherit this from me. I cannot even begin to imagine what you are going through, but I am glad her test have come back negative. And I am so glad to hear she is up and moving again. that had to be a horrible and petrifying experience. Mine was and I was almost 30. She is a trooper like her mom.