Quote:
Originally Posted by lady_express_44
It is spinal lesion activity, Kelly, that seems clear.
It also seems clear that you are in an attack. The only part you don't know is how much worse that attack might be if you go off LDN at this point.
I would ride this out, and IF you decide to go back on Betaseron, do so after this attack lets up.
I have have three spinal lesion attacks since getting dx, and the very best one was while on LDN. None were nice though.
Cherie
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Thanks, Cherie.
I don't plan on stopping LDN. I can still walk, albeit slow and clumsy, but I can still walk.
Honestly, I don't believe any of the DMD's do anymore than LDN. And sometimes cause undesirable side effects.....so I'm sticking with my LDN. I've had attacks while on the DMD's and they were worse than this so I'm taking this as a good sign that the LDN is doing what I need it to do.
I saw your post about your daughter. I'm glad she's doing better. It's so hard to watch your child struggle......I'm still praying for both of you.
Thanks for taking the time to address my issue when you've clearly got bigger issues of your own.