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new member
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Join Date: Nov 2008
Posts: 16
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new member
Join Date: Nov 2008
Posts: 16
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Thyroid neuropathy and more
Hi everyone,
I am exited having found this forum and hope to find new friends and information to make my life and yours better little by little.
In December 2006 I wrote this:
Quote:
At least since 2004 I have been troubled by dizziness, headaches, tingling in fingers and toes, sweating, vomiting, stomach aches, difficulty in breathing - though I am well treated on asthma meds.
In March 2006 I had a mild flu, in April violent balance problems and vomiting, was told it was virus on the balance nerve, but recent examinations show no problems with my ears. I have been attacked with balance problems and dizziness attacks ever since in waves where I have been falling on my butt and taken falls on walls and door posts with my right shoulder. I fell down the stairs onto my knees. It mostly happens when I don’t concentrate entirely on walking or when I have something in my hands.
On October 15th I was admitted to hospital with pains and numbness and prickling in my right lower leg and foot, during the day it spread to the whole leg, fingers on right hand and the all arm, lips. During the 11 days it has spread to left foot and left hand, tingling in my tongue and pain in the tip of my tongue. At the hospital it was suggested that it might be a physical reaction caused by long time stress. I have been stressed for several reasons in the past two years.
I have developed tremors. It has been there in my right hand all along, only I have dismissed it. Now I get tics/shaking my head involuntary or even the whole body, and the hands when I need small detail things done like buttons. The tremors are there all the time whether visible or not.
I have an illusory body tilt to the left mainly when lying bed. It feels like rolling left in a kayak.
I have headaches, mostly when I try to concentrate too much to make my resisting limbs work.
I had muscle weakness, but I have slowly trained my muscles back into working order, and they do work when I am not too tired.
I still have sensory oddness all over with tingling, burning, prickling, electrical shocks, numbness, sensitivity to heat, especially in the skin, feet and hands. The face is warm and flushing. My face and hands are sweating. Stiffness and cramping of muscles and difficulty in relaxing. Sometimes I get very hungry almost ravenous, and other times I am nauseous and not at all interested in food. My balance is still off, and I have difficulty in walking, it is like walking on ice skates. When trying to stand on my heels, I loose my balance. I have joint pains in toes, knees, fingers and wrists. Sometimes I am out of breath when doing minor things. Asthma is under control. Head tremors and hand tremors are worse when I am tired. Main problem right now is fatigue. I want to do more than my body wants to do.
Tests: Neurological tests, CT scan, MR scan, blood samples, spiral sample, EMG.
Ruled out is MS, DS, aneurisms, tumours, bacterial infection, borelia, blood clots, ear problems, vitamin E deficiency, celiac disease, virus tested for, early cancer, nerve infection, long fibre neuropathy.
Objective finds: normal reflexes, uncertain finger movements and uncertain touch-to-the-nose movements as well as my left foot being unable to feel cold things, slightly elevated spinal protein 0,69, small increase in TSH Thyroid gland 5,09, but a repeat was normal, small increase in two types of white blood cells 11,5 and 8,5, P-ALAT 66.
In response to my question about the significance of the slightly elevated spinal proteins I was told that my body was reacting against something, but it was like a person with high fewer asking why, so they could not tell what caused it.
Diagnose: none so far, but being suspected of some sensory poly neuropathy.
My mother had a thyroid disease, probably Hashimoto. Pills: Eltroxin (Levothyroxin). She also had reumatism, polio as a child, and food allergy.
From articles that I have read autoimmune diseases runs in the family.
So far I have hayfewer, food allergy, asthma and something undiagnosed.
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Well, reading all my tests and searching the internet and getting retested for Thyroid disease including antibodies - I finally got the diagnose Hastimoto's Disease and B12 and D vitamin deficiency. My neuropathy is much much better when properly medicated for thyroid problems, but I have persisting neuropathy problems in hands and feet including Carpal Tunnel.
A new little something has occured now, namely Vulvodynia - a new running around to doctors who cannot do anything about it. No known treatment and a diagnosis which just means "pain in the vulva". I already knew that but what is to be done with it???. I have been told that I have a lot more nerve endings and that it probably has to do with my already existing neuropathy, but it has gotten worse in stead of better on my thyroid meds. I have tried all things suggested on the internet for this, but if any of you have any clues, I would be grateful!
Life is wonderful - a little more knowledge to doctors and researchers would make life even more wonderful. Treatment and good wishes to all!
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