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Old 03-13-2009, 06:57 PM
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Hi,

I had a terrible time with HBP until I started clonidine. I was initially on .2 mg (.1 mg pill in the morning and in the evening) but my BP was still pretty volatile. So my PM doc switched me to a clonidine patch - .2 mg Catapres. I also take Topamax, Cymbalta, Percocet, lidoderrm patches on my shoudler and neck, and Soma. I've added calcium, vitamin C, cranberry juice, tums, and other supplements to try to stay healthy and offset the affects of the drugs and the RSD on my body.

I've had 4 SGB so far. I don't feel like my symptoms are so out of control any more, but I am far from better. I think the combo of PT, meds and blocks and the constant support of my husband and family is slowly helping me.

I still burn like crazy. And headaches are a real problem. It's easier for me to drive in a car if I am the driver in my little Civic. Bumpy roads when my husband is driving in his big SUV are just a nightmare!! I just don't get in his car anymore if I can help it.

I am really sorry that you are getting sicker. Go to the very best doctor you can. I did not start getting better until I got out of RI to Boston. My RI doctor went to Harvard medical school, and he messed me up for months by referring me to a CHIROPRACTOR!!! The Cleveland Clinic has a great rep - go for it! By getting the right mix like I did hopefully you will also start to feel like you are turning the corner.

I think the weather helps, too. Our snow is almost gone- how cool is that!!!

Good luck to you, Sandy
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"Thanks for this!" says:
MominPainRSD (03-14-2009)