Hi Annie,
Thanks for the concern and support. I'm in a better frame of mind today than last night, though.
Dr. P. ordered a blood test for B12, vit E and copper levels. I have to check the copper thing out - that's a new one to me!
I'll be posting some info. she gave me that I think would be of interest to others on the forum. She's really very sharp and I'm really impressed with her knowlege of all the new info I've seen on MG. I do believe she's better that even my old fav. neuro I lost due to insurance changes.
I have absolutely no doubt that Chronic Demyeliniating Inflammatory Polyneuropathy is the cause of the other issues that have plagued me since my very first severe incidence with MG. Every single symptom describes my symptoms that are not MG that have had all the neuro's so confused. There is a high incendence of MG occuring with this disease. One of my old tests, evoke potential / nerve velocity, showed "something" that the neuro then expected to end up being MS. This disease is like MS except it attacks the myelin in the outer limbs instead of the spinal cord/brain myelin. I would appear to be taking the more severe recurring path, because over the years I am displaying the progression symptoms - right down to this new blind spot in my right eye.
The surgeon that coiled my aneurysm in January thought my blind spot was due to a type of stroke, but he had me see an opthalmalogist to rule out other causes, confirm stroke, etc. I had a field of vision test done Thursday, and he is puzzled. It is definetly NOT a brain stroke of any kind, shows up like glaucoma but I absolutely don't have glaucoma - he told me he's concerned, confused because he's never seen it look like this test showed. I put in a call to him today to check on the CDIP and how it would show when it starts to cause the reduced field of vision. But when I saw that on the CDIP progression symptoms, it was like a punctuation mark for me.
Anyway, my hubby and I decided today that I will apply for disability, we'll sell off some stuff to pay bills, I'll see if my boss (who is just wonderful, by the way) will allow me to perform accounting duties as a contract employee so I can cut my hours way back and get more rest. He suggested that when I had my last flare, then I started to pull out of it so...
This way I can devote more time to enjoying life to the best of my ability instead of spending all my off time resting to get ready to work every day.
And I can get more rest and hopefully slow this stuff down or even beat it (wouldn't that be awesome), having the energy to do the research into treatments etc. Also, my son just married last year and I'm told it will be a couple of years before they give me my second grandchild - my daughter had a girl 10 years ago that has been the light of our lives!
So I've got to stick around long enough to spoil that one too
and watch it develop like have I with Alexis. It wouldn't be fair to my son otherwise, right? And while I'm waiting, instead of resting up on off time to work full time, we'll actually get to do some camping and fishing this year!!! YEAH!!
You see, I really am an optimist, but I'm also a realist so my goal now is to enjoy life within my limits - maybe pushing them a little - and do my best to stay functional as long and as much as possible.
You take care and have a great night. Thanks again for the encouragement!
