Hey Jen!
When I was very weak, my episodes - problems swallowing - just appeared - no rhyme or reason..........
Obviously that was really scary.......I remember being in the booth having my cat scan done and foaming @ the mouth b/c I wasn't able to lift my head and swallow--------longest 15 min of my life......but at that time I just thought I was going crazy, no idea I had MG yet...........
Hang in there hon!
Big, big hugs!
Erin

Quote:
Originally Posted by rumpled
Another question - when you choke - does it just - *happen*? Like we are watching TV and all of a sudden, I cannot breathe or swallow when just seconds ago I was just relaxing, watching an episode of house. I was not laughing or doing anything. This happens in the movies or just sitting, sometimes laying down - like I cannot control my saliva, but it it not an excessive amount - all is normal to dry even.
Yes, I do have a LOT of endocrine issues. They are er, somewhat stable except for the tumor coming back. According to my endo, the growth hormone can cause some muscle issue, but it just would not be to this extent. I do know a lot of people who have as many endo issues as me and they are not as weak as me. The neuro, besides saying it was depression, did also say maybe it was my life *not hyped up on steroids vs my life now normal* but my husband and I assured him that my weakness went further than that. I think not being able to change the fridge water filter, fighting to lift a gallon of milk, and changing cars as I could not get out of the other one is different than just normal weakness. Besides, I went to PT and the therapist noted that I made no gains, even though I did all my routines and the ortho prescibed full body therapy. That was on growth hormone.
Whatever, I don't need a new health problem anyway. Got plenty.
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