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Old 03-14-2009, 08:26 PM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Pack your bag and git!

You can talk to the doc and get a scrip for oral steroids or the actual steroid powder that you can mix with juice and drink if you are that scared of relapse, but isn't it only a few days?

I did a 10 day trip to watch my godson graduate from the Citadel in May of 07. Coming from Maine, SC was HOT!

I was scheduled to start Tysabri and the doc called when he got the results from my MRI and told me I had to have a 3 day course of IVSM. I told him I was GOING to SC and I was leaving in THREE hours and he had to come up with some other solution.

He sent me with 180 prednisone to be taken 30 pills twice a day.

I waited until after the graduation and did the pills. I warned everyone there that it was steroids and the problems I had while taking them as a warning.

No problems resulted from either me taking the pills or 'roid rage or any of that. I rested and hung out on the beach, with the younger folks obliging my need to cool down by pouring buckets of water over my head when they thought I needed it!

In short, even though I knew I had to do what I had to do as far as the steroids went, I still had a good time and I wouldn't have missed it for the world! I was with people who loved me and looked out for me, but nothing went wrong and if it had, we would have dealt with it!


GO AND HAVE FUN!!!

__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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