I was so happy to hear from all of you. I have been on the TOS site for along time. The one thing about movement is my Dr. if Philly said not to use my right arm at all! My pain has spread to different areas and I am using more percocet than before. I also take neurontin. There are so many symptoms that I never associated with TOS that are now turning out to be RSD. The tremors, when I'm typing my fingers skip to a different key. I feel like I'm shaking all the time. Palm sweating. I'll wake up some days and can't move or even tell my husband I need help. Ketamine seems so extreme but I don't know what to do. I have been doing online research and that's also why I'm here. My arms and legs hurt constantly. By the end of the day I'm done!! My husband understands sometimes but, it's selective. I have increased pain meds and have to now call the doctor for an early renewal and I don't know how that will go.

Thank you for all your support. It was a big blow with this diagnosis and treatment. Any information is greatly appreciated. Linda