I'm SO sorry to hear that you are having such a tough time of it lately, Legz. I really hope that things start improving for you soon and I am keeping you in my thoughts and prayers.
I have had no experience with IVSM so I can't comment on that unfortunately but I would definitely speak to your Doctor and see what he/she thinks you should do.
I'm sorry that I can't help you more. Just know that I care about you and if you need to talk, I am here for you as I DO understand some of the side effects that you are having!!!
Take care of yourself and you are in my thoughts. Please keep us updated when you can!!