Thread: Tysabri Information & Check In
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Old 03-16-2009, 03:55 PM
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Natalie8 View Post
Hi all, I'm getting my 9th infusion right now! The nurse infused over 45 minutes. Now he is following with saline. Isn't it supposed to be 1 hour? I think sometimes he shortens the time. Could this explain why some infusions make me feel sicker than others? When I had a month of antibiotics they had to slow the infusion to 1 hour instead of 30 minutes which made me feel WAY better. I'm feeling pretty nauseous and cruddy right now. I've had so many annoying problems with this clinic!!
All I can tell you is that the procedure is to infuse over one hour at my place. The whole thing takes about three hours start to finish from the time I walk in until the time I walk out, and they follow every step religiously. It sounds like your infusion center is in a rush to get the chair for someone else.

You need to speak up and let them know.

I'd let your neuro know too. Perhaps he/she can intervene on your behalf?

It would really suck if you had a reaction and got taken off it because of a nurse not following the protocol!
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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4boysmom (03-16-2009), ewizabeth (03-16-2009), Natalie8 (03-16-2009)