Sweetie:

Hang in there. Some days are really bad, I understand that. I can't fix it for you. But I can say that there are lots of us here who understand TOTALLY what you are dealing with.

That sense of loss of control is harder to handle than the actual pain itself. It steals things from who you are. And having to live in fear of the 'strikes' is so, so horrible.

We get it. If it helps to post feel free. We're here with you. And WE KNOW what it feels like. Even most of the docs don't, not really.

CAT