Originally Posted by ali12

I haven't been to see Dr.Schwartzman before however a few of my friends with RSD have been to see him.

One of my friends who has severe full-body RSD tried to get an appointment with Dr.Schwartzman and she was told that the waiting list was 18-24 months and it was just time she simply couldn't afford to lose because her RSD was really bad - it got to the point where she actually has severe fits and seizures from it and her doctors have told her that if she doesn't get treated really soon, things could be SO much worse for her. I couldn't believe it when she told me how long the waiting list was - she has put herself onto the list but is currently trying to find another doctor that does the Ketamine. For the time being, she is having Ketamine Infusions in New Jersey with Doctor Getson but she really needs the coma treatment she has been told by several other doctors.

Another one of my friends with full-body RSD got to see Doctor Schwartzman and he said he couldn't do anything other than the Ketamine Coma for her but she was told it would take 3 years before she could get it done.

I'm sorry that I can't help you that much but just wanted to let you know about what my friends were told. I agree with what GymJunkie said - please be realistic and you are only in the early stages of RSD (even though it might not feel like it at times!) so it might be worthwhile trying to find other treatment options that might work before persuing this. You could always put your name on the waiting list to see Schwartzman and try other treatment and then if it doesn't work, wait until you can get in to see him. I was told by a friend that Schwartzman will sometimes only see patients if their RSD is severe and if they have tried other treatments that didn't work for them.

I wish you all the best and hope things get better for you soon