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Old 03-18-2009, 11:20 AM
LinJane LinJane is offline
Member
 
Join Date: Jul 2007
Location: New Jersey
Posts: 501
15 yr Member
LinJane LinJane is offline
Member
 
Join Date: Jul 2007
Location: New Jersey
Posts: 501
15 yr Member
Default Ketamine

I am also new to this. I have had TOS for 10 years, had been pain free for 4 and now diagnosed with RSD. I got an appointment with Dr. S in February and am set up for the 10 day infusion in September. I had seen him before. He had diagnosed me with the TOS so I don't know if being a former patient made a difference in getting an appointment. I only waited about 6 months. He wants patients off pain meds but I am in so much pain I find it impossible. I take neurontin which I find to be completely ineffective. I have experienced coming off about a dozen meds before and it wasn't pretty. I had to spend a 2 weeks in Columbia Presbyterian Hosp in 2001. Actually, I checked in on 9/10/2001. I witnessed from my room the 2nd plane crash into the World Trade Center. That didn't help much. My family was in NJ and I couldn't reach them. My husband had to pick my children up from school because no one new what was happening.

I am more than willing to get off of pain meds but I can't do it while still being in such horrible pain. I have to get up and get kids ready for school and go to work, just like I am sure you all do. When we have obligations we can't forego, it makes it tough. Especially when you are told you have to wait so long.

I really like, and trust, Dr. S. I hope this is the answer but I am still confused about ketamine and am still doing research. Linda
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