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Old 03-20-2009, 08:51 AM
pabb pabb is offline
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Join Date: Sep 2006
Posts: 779
15 yr Member
pabb pabb is offline
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Join Date: Sep 2006
Posts: 779
15 yr Member
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Quote:
Originally Posted by Patricialyn View Post
Hello again,

Thank you so much for all of your supportive as well as informative replies back to me. I really appreciate you folks taking the time to read my post, and getting back to me so quickly.

I have to admit, I have not taken control, and have not done some things that could possibly of helped my symptoms, such as trying different medications, taking supplements, having more tests done, when I had the excellent insurance. What was I thinking? I wanted to trust my neuro, since she is the one with the degree, and is suppose to have such great knowledge of neurological disorders!, but even her along with all the doctors were more easily ready to just write out a script, and not find out the REAL cause of my PN.

Possibly I would have been more easily excepting of taking a medication, or treatment plan for my PN, if I knew the cause, instead of so many doctors seeming to be guessing.

I have a unrealistic fear of medications as it is, so that in addition to the wondering if taking a medication would just mask the symptoms, and the real cause of my PN will never be found, or get worse is always on my mind.

I pray that miraculously my symptoms will just go away, hey maybe right? My daughter and her husband are both ministers, that should pull me some weight.

The logic side of me knows now that is not going to happen, unless some action is taken and by me, and the realization of it is that my PN is slowly getting worse, not better.

I worry intensely about having this disorder, now it seems one day turned into two, the days to weeks, and now years, and I still feel like I have no control.

I care for my elderly mother, she lives 22 miles from me, and now a SIL that has a brain tumor as well, not feeling good myself. Others don't really know the extent of my worry, and my pain that I have from this disorder, only my husband, and even he really is not aware of the real agony I am in most of the time. Uggg sorry about the complaining.

With financial issues a major concern presently due to our limited health insurance, I feel frozen in a sea of ice, as far as getting further tests, which angers me so. However that is not an excuse for not doing what I can do, so why am I so stuck, and doing nothing?I need a plan so I don't feel so hopeless, and also I need to feel better.

Excuse me please, for not replying back at this time to some of you that asked specific questions, however I will do so in my next post, I want to go back and review your posts again.

Thanks again

Patty
get some counseling....i see anger and grief in you post....anger at the disease and grief "over" it....perhaps referring to the stages of grief would be helpful.....
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