Hi farmgal, welcome to the club.
Sounds like you have done everything right! You might start taking the flexaril at night to avoid the drowsy days. Also I am told to 'switch up' the meds every year or so, so instead of flexaril a good alternate might be dantrium. Keep your body guessing, don't let it get used to the same routine of meds.
If you can't tolerate the pain any longer, surgery might be your last bet. Do go to an experienced TOS surgeon for this. I can't stress that enough.
again, welcome!

Anne