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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Hugs to you ~!!
Welcome Twee...so sorry for all you have been going through. I too learned the hard way that docs SEE what fits their training and expertise and if you dont fit nicely into the boxes (tests..criteria) that they know..well..they dont know what to do with you.
Many also do not have the time to advocate in your behalf anyways..thats our medical system. I have had good PCPs who do advocate. Each specialists I went to had their diagnosis..or dismissed me. I like one patient said she was giving up MDs for Lent !!!
Last year I swore off docs for awhile. Then I got a good PCP..and now I am starting to find the right docs and get answers. I finally got MS ruled out and I am fine with that. There are many disorders that cause neuro symptoms even toxicity..heavy metals in our foods..drinks..add up to some nasty disorders.
A good work up is much needed. Anemia..cysts..and aneuryism ARE serious enough!! I just left 3 neuros..all good..all trying to figure things out..ruling MS in..then out..then all kinds of things..until I met an autonomic specialist who put it all together for me.
Seems we often have more than one disease going on..each making the other worse. I too dont fit in lab results which makes diagnosing so much easier on MDs rightly so.
Are you a woman of faith? Cuz once i found the BEST doc by closing my eyes..saying a prayer..and pointing to the yellow pages. I DO believe in being spiritually led. 3 months may seem long to you..cuz you just haven't found the right doc. It could be an endochronologist.. or someone at MAYO
I will pray you find the answers you deserve..but..be prepared you may need more than 1 doc. Do you have a really good PCP?? They are supposed to help coordinate this for you..
Warmly Jan
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Yes I believe in miracles~!!
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