Becky, You're in good hands with Mrs. D on this one.

I really hope this is not what is going on with you. Can they replace the coil?

Metals and the body often don't mix well. Metals degrade, just like most other substances.

As for the cold liquids, both heat and cold make MG worse. So it may be the MG acting up.

Please ask the guys over on the PN forum about mega-methylcobalamin doses and it helping with CIDP. It's the kind of B12 that you put under your tongue and it gets absorbed right into the blood stream. I know it won't "cure" whatever is going on but it has been shown to help somewhat.

This neuro sounds good so I doubt she will poo-poo you and your concerns! This is scary stuff, to think that something in your body is causing polyneuropathy. You have every right to be a little freaked and to get help right away. Hang in there. I'm sure they can help you.

Annie