Thread: Tysabri Information & Check In
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Old 03-22-2009, 04:10 PM
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by drwheeler View Post
I used Avonex for 10 years and have been on Tysabri for 16 months. I developed some retinal infarcts 2 weeks ago and had blood tests which show I am anemic. I have been stable and have had no adverse effects until now. My neurologist stopped the Tysabri until we can determine the cause for the anemia.
Today was the first day I have had any symptoms...wiped out all day and my wife says I look pale. As if MS doesn't cause enough fatigue
Has anyone else had any similar stories?

Ron
Hi Ron!
Welcome to Neurotalk and more specifically to the Tysabri thread!
23 infusions here with # 24 next week.

I haven't had any problems with anemia, but being a female I take a multivite with extra iron anyway, along with a pretty healthy diet and lots of cast iron cooking!

Did the doc check your B12 levels? That could be a factor.

I am sure if there is someone who is on Tysabri who has had experience with this, they will pop up and give you their input!
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diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
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