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Old 03-23-2009, 02:52 AM
Lara Lara is offline
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Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
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[I logged in here this morning my time and I started to write my message and my internet went offline and I haven't been able to get back till now (evening). I was still logged in. LOL I would have thought it might have logged me off after a certain time, like 10 minutes.]

Moi, several other things that I would think about right now during this waxing time you're having...

Have you been experiencing more than your usual symptoms of any other conditions that you may have?

If so, then that might be something worth looking into as well. Sometimes treating the co-morbid or whatever else you may have had escallate recently can really help with calming down the tics. Also wondering if your renaissance isn't related to anything in particular, like unusual mood swings, that could be affecting? Sorry to ask such personal questions here.

Some people find that CBT (just an example, there are others) can help with certain symptoms and that in turn might create a less stressful day to day life and then the tics might calm down.

Also, have you had any changes in medication recently?
I have no idea if you take medications for anything, but some medications can affect the severity of tics. Some medication dosage changes can upset the apple cart too.

Do think about other things that might be affecting your level of tics right now because, esp. in people who have TS and comorbid conditions, sometimes working on balancing out other things, be it OC stuff or a number of other things can actually lead to some relief in intensity of the tics.

About the neck brace. Heck, something as you describe might just be a little rigid don't you think? I mean, the soft one can cushion but something really hard like that, esp. attached to your chin as well might cause more problems than it's worth.

Massage, as Doody mentioned is terrific. Actually giving a massage can help you relax as well.

I figure if you're in pain, get pain relief. I'm still not sure of seeing a chiropractor for any type of adjustment at this particular moment until you have xrays etc.. At this stage. I know chiros do other stuff and same with osteopaths. I have two concerns. One being that any type of manipulation or adjustment might only work for a minute or less if your tics are that severe right now.

Moi, you have more than one thing going on... There's the tics and whatever else, and there's the pain and potential for serious injury again and damage. Treat the pain, manage the symptoms, but also remember that if this is a regular waxing period of tics, then it will get better. But in the meantime you have to find out why you have the pain and itching. If this isn't like one of your regular waxing periods then I would be trying to figure out what needs attention to make it all change all of a sudden.

Easier said than done, I know.
You need to see the doctor to figure out if the tics have caused damage to your spine.
No amount of pain relief is going to get rid of the tics, but in the mean time you need to do something or take something for the pain because the more pain you have the more you will tic!

Just adding in here for the 5th edit... I have spinal issues, too numerous to ever mention, but I also have a carpel tunnel nerve entrapment (elbow) that causes me to have numb fingers and burning and itching. There are some really good illustrations in the TOS Forum btw which Jo posted.

Here's just one of them for example: http://neurotalk.psychcentral.com/post284498-35.html

I can't find the other ones I was specifically looking for I'm sorry. Will try again tomorrow.

AND

Just before anyone wonders what on earth we were doing "asking" Moi to get botox...

We didn't actually 'ask' Moi to get botox as in... Like "hey moi, how about some botox???" It was a serious endeavour for serious reasons and well and truly researched with a particular TS Specialist and then Moi did more investigations etc....

Botox has been used in specific and rare occasions to treat severe vocal tics. We're not talking about using something here for cosmetic reasons because we all know that Moi is pretty enough already (and younger too).

Moi was experiencing some very severe and long-lasting tics that were both painful and harmful to himself. At the time certain doctors had found that a few of their patients received some relief from severe vocal tics (even if somewhat temporary) with use of botox.

Last edited by Lara; 03-23-2009 at 04:47 AM. Reason: rewording some things and adding others
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