Originally Posted by ras1256

Hi again.

I was just started on the prednisone about a month ago due to the MG weakness.

My scotoma is a white or very gray spot. I didn't have an angiogram on it - just the ophalmologist visits where he checked for signs of brain stroke, glaucoma, retina problems (all neg) and he did the vision field test which is what really threw him. Actually, I have had intermittent pain in my eyes for years that has increased in the last year or so. Mostly when looking at something close like when I'm lighting a smoke. So I really think this scotoma has its start prior to the coil and just got way bad after, like all my other symptoms.

I just saw something on the inet that oral B-12 won't help much with a certain condition - unfortunately I don't remember the exact info, but it came up while I was researching this platinum/demyeliniation/CIPD stuff.

I can't wait to get the results on the b-12 test. As I understand it though, if it shows I'm deficient, that's not necessarily gonna get me off the hook on this CIDP thing though, is it. It's a possible cause of PN, but with this long a run, I'm kinda in a bad place, right?

Again - Thanks so much for all your efforts on my behalf. And I LOVED the link to the quotes - see the one I've added to my signature!