Quote:
Originally Posted by marcstck
Just a note, if your disease is in fact progressive, it is very likely that you won't find much enhancement on your MRIs. One of the hallmarks of progressive disease is that the lesions are much more likely to be nonenhancing...
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Thank you. I had no idea they don't really show enhancing. I am wondering though if this could be why I reacted so poorly to the steroids? I mean every one of my symptoms is actually worse. And add to that the usual side effects of the steroids themselves.
I did get the printed report from the brain scan, which says that this study is not tailored to evaluate the orbits or optic nerves, but that the optic nerves do not appear to be enlarged.
All in all for now there is nothing I can do but wait, so no point in stressing over it. Easier said than done yes, but I have been through worse. I mean I am a mom. 47 hours of labor with no drugs tells me I can overcome this stupid disease.