I have both sensory and motor damage - a bilateral foot drop, numbness up to my knees, damage to a nerve in my hip which means I drag one leg (can't lift it off the ground), damage to half my tongue (one side doesn't work), a small amount of damage to my swallowing, - the latter two are from damage to cranial nerves. I have lost my gag reflex - to be honest, I can never remember it all. I am sure I will keep coming back to this post to add in new things, so watch this space. Oh, I just remembered I have a slight facial drop, plus patchy numbness on my face.

I also have various other problems which are central, so are not part of my mononeuritis but are equally annoying (like my left arm which is becoming very weak and my fingers very fumbly). My neuro is hoping that the nerve in my hip will heal and although I am trying to be optimistic I am not holding my breath as I have never got much if any function back once it has gone.

I am basically treated with prednisone, iv steroids as necessary, and rituxan infusions, plus a zillion other meds for other aspects of my lupus plus my epilepsy.

How about you ?

raglet