Quote:
Originally Posted by hopeful11
Hi I am new to posting but need some ideas. I've had RSD for 11 years. I have 3 kids ( 16,18,21) My 18 year old is very sensitive to my pain and issues with RSD. He wrote a writting assingment on me and the disease. I thought I was doing a good job hidding most of my problems but after reading this paper I know that the kids were seeing more than I thought. I would like to know how others have help their kids?
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Hello Hopeful,
I have 2 kids (24 and 21) I have had full body RSD for 8 years. It was hardest for my now 21 year old daughter. I had her read the information on the RSDS.org website. There was a time when both my kids made the comment "I want my old mom back". I told them I want the old mom back but reality is she gone. I told them this wasn't a condition I asked for or want but it's what I have to deal with. Helping your kids get information about the condition will help them udnerstand what your are going through.
Best of luck,
Sbowling