Originally Posted by SBOWLING

Hello,

I was told about this site earlier today what I have read so far is very interesting and comforting. I have full body RSD/CRPS. I was diagnoised about8 years ago. I had disc fusion at C6 and C7. The nerve in my right arm that was pinched by the ruptured disc was stressed before it completely healed. I used the arm to pull on a comforter stuck between the mattress and foot board. Over a two year period the RSD spread from my right arm to the left and then my legs. In the last couple of years it has started to affect my heart and lungs. Like all of you after many many failed treatments and 12 different doctors from different parts of Ohio. I finaly have a team of doctors who understand RSD and can help me manage the flair ups. I have been to Philly to see a specialist who treats the condition with Ketamine infusions. They didn't work for me and now he has given me the option of going to Germany and being put into a Ketamie coma. He says I have a 50/50 chance of it helping me. I have some concerns and haven't agreed to have it done. I see a Chiropractor 3 days a week sometimes 5 if I am flaired. He is an activator doctor and his adjustments have helped me stay off the heavy drugs. I tried that way and I couldn't handle the side effects. I go to the YMCA and water walk and take a 1 hour arthritis class twice a week. When my body is red and on fire from the RSD the cool water feels great. I took long term disability from my job, that I loved, 3 years ago. I refuse to sit around and let the pain destroy my life. In the beginning of this challenge in my life I almost gave in to suicide. Instead of finishing the walk to my garage and starting my car I got on my knees and gave my burden to God. Every day I ask for the energy and strength to get through the day and every night I ask for the peace of mind that passes all understanding so I can get a good night sleep.
He has never failed to meet my needs. The truly hard part was giving my health concerns to him and allowing him to work in my life. For 5 years I tried to handle it my way and I was miserable. Once I gave him the burden relief started to happen. One right doctor lead to the next and now I have 5 doctors I see on a regular basis that help me cope with all that is happening to my body. On the days I don't go to the YMCA I volunteer at a nursing home and for a pre-school. I can't handle the stress of the career I once had. But my life is complete and my health doesn't manage my life I manage my health.
I can't tell you all of this without telling you that I also have an amazing support group. I have a wonderful husband, 2 kids and amazing brothers and sisters. RSD has taken a lot away from my life and caused me to do a lot of things differently. But, it hasn' taken away the love and support of my family.
I am looking forward to learning from all of you and supporting you in any way I can.