Hi, I have peripheral polyneuropathy and have been told I most probably have Sjogren's. None of my tests for Sjogren's as of yet have been positive but I do have severely dry eyes/nose/mouth and quite a few other symptoms (Raynauds etc). I am currently awaiting my second lip biopsy which hopefully will confirm the Sjogren's. I have been told (and have read) that polyneuropathy can be a side effect of a number of autoimmune diseases, including Sjogren's. I believe the medical community is quite aware of these linkages but that there is little being done to figure out cause, treatment etc. I also find it confusing how I can be told there is no treatment for Sjogren's but I could try prednisone for my neuropathy (which is caused by Sjogren's....). Anyway, good luck, let us know how it goes.
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Originally Posted by spkar0517
i am seeking members who not only have autoimmune issues (as i do) but other problems such as neuropathy. I believe these issues are related and think we need to join together to get the attention of the medical community. I am not ready to accept a diagnosis of dealing with pain. I have my own autoimmune issues as well as neuropathy and believe there is a connection.
Please see my posting under peripheral neuropathy. i am bound and determined to pursue this.. would love some help.
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