Quote:
Originally Posted by butterflyLisa
 I was looking at the post. I seen you that some of you have it in the same area as I do with RSD. I haven't walked in 7 months an go to PT 3 times a week. My fear is when I learn to walk again. Can Rsd attack an knock me down where I have to learn how to walk again? I broke my foot back in Aug of 08. 4 cast later foot no better. Seen another Doctor an he knew right away. I get depress but keep on going. I don't like people to see me! Is this common? Oh an can it spread up my leg. It has made it from my foot to my knee. It is always cold,swells,changes color an some days hard to even get up. Yet I force myself. I refuse to give in. I have a walker at home an just got fitted for a prosthetic AFO. I know I have along journey. I feel so alone. Friends have been dear to me. Family members don't understand.
Thank you for your time |
Hello Lisa,
You have some very good concerns. RSD effects everyone differently. No two people have the same nervous system. The heart muscle is somewhat the same so Western Medicine has come along way with heart surgery. They still have a lot to learn about the nervous system.
You need to take control of your health and become an active participant in your care. Depression is a side effect of chronic pain don't let either run your life. Your attitude to refuse to give in will be important to your health. The advise from Aintsobad couldn't be more helpful. You need to put together a medical team that will be working for you.
Don't shut yourself in your house that's telling RSD it has won another battle in this fight to keep control. You need to get out and see people. Walking can be an issue for me so I walk in the pool at the YMCA. Sometimes with a class sometimes by myself. The water allows you to be weightless so you don't feel the pain as bad. Don't be ashamed to need the support of a walker or cain in public. That's your pride getting in the way. I had that issue to but the cain allowed me to enjoy shopping with my sisters. Something we always do together I just can't do it for as long.
The pain from RSD can take over all aspects of your life if YOU ALLOW it to happen. It causes us to change how we do things in life but don't allow it change who you are.
Welcome to this site I'm a new member but not new to RSD/CRPS.
Sbowling