Hey Kathy d,
I just wanted to let you know that when I read what you typed it made me cry because I am going through some tough times myself. I have had rsd since 2002 and I just keep getting worse. I have a 13 year old that had to start real young at helping me and I feel responsible for taking away her life. It is not fair. I want her to live like a teen should, but I know that I didn't ask for this monster and to get her to understand is pretty hard. I don't think she fully understands what is happening to me and I want her to understand even a little if I can. Every time I try to bring it up to her she just says yeah I know mom I hear it all the time. It hurts but I know she is just trying to be a teenager. She doesn't want to think about her mom in that way right now. I did watch Oprah last week and one show she had on was with Montel Williams. I don't know if anyone of you saw that or not, but I didn't think about taping it so I wrote a message to the Oprah show asking if it is possible to get a copy of that taping because everything he said was how I am feeling even though he has MS he has just as much pain as we do. He was crying on the show and I never see him cry while taping his shows. He said so many things that were true about the way I feel that I want my family to see it and maybe they would understand some of what I am going through emotionally as well as some physical. I think it might be the easiest way to get through to our children. I feel what the heck it is worth a try. I have nothing to lose.

Sincerely,
Tracy Tracy(screwballpookie)