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Old 03-26-2009, 06:46 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Heard that.

Also heard from my neuro today: The U.S. patient (Deceased, 49 y.o. F, 14 infusions, previous treatment with methotrexate, last methotrexate 4 months before first infusion) and her family refused treatment and had no PLEX or antiviral treatment after diagnosis of PML was delivered.

I am looking for information now, but it's pretty scarce since she's U.S. and HIPAA laws kept everything private.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
AfterMyNap (03-26-2009), ewizabeth (03-26-2009), komokazi (03-27-2009)