Thanks for pointing that out Ada. I registered on both forums now with the same name. Hope I can reconnect to the RSD community.

My legs seam fairly stable, they are a stage 3 after almost 3 years of not being diagnosed, but the meds keep it in check (it's hell nonetheless). I have to use a wheelchair to go places and that took getting used to (it still does). I got intense fysiotherapy for my muscles and they actually came back a bit (my upper legs were thinner than my calves).

My arms are unstable, unfortunately. I am on Calcitonine injections now continuously, because it's the ONLY thing that helps. If I forget an injection, my hands start to stiffen up, the right hand especially... so that's still a fight in progress I'm afraid.

But I keep on being optimistic about it, not much else I can do, right?

Happy to be here!