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Member
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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Member
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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The Neurontin (2700 mg a day in my case) significantly reduced the sensitivity to touch (which is a sign of nerve pain) and the pain. I was in a cold stage (stage 3) when I started taking the meds and the pain I had slowly improved. The first true relief I had. Beside the Neurontin I also take Buprenorphine for breakthrough pain and I have Buprenorphine pain patches as well. It doesn't take away the pain fully, but it makes life more manageable. Before the pain management I didn't even feel that I had legs anymore (the RSD is in both legs fully, stage 3, stable now), and they felt like dead wood, not flesh and blood and the pain was excruciating. Everything was pain. I still can't fully feel my feet though. It's a weird sensation. My legs are still cold. They still hurt. Sometimes I get the dark purple / mottled look again. It can vary, and the cycle of breakthrough pain can be hell in itself. It's not easy with the pain management either, but it's easier.
I think good quality pain management is needed first, before you change your entire wardrobe and start living in function of the pain. I had to do that for years because my RSD went undiagnosed for almost 3 years.
It is still going to be hell wearing clothes, but the pain won't be as intense, you will be able to endure it with better pain management. I lived in my PJ's for YEARS before I got good quality pain management. Some days I still do, but I do try to get some routine back into my life by not giving up on clothes (shoes especially) fully. Shoes are very difficult for me to wear due to swelling that sometimes occurs. It depends. It's hard to find good clothes.
I'd suggest you go see a pain specialist.
Last edited by CRPSbe; 03-28-2009 at 02:52 PM.
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