hi twee and welcome to NT.
it sounds like you have a lot on your plate and enuf to be worried about.
try to make a plan of care for yourself with your team of drs. i've found that having a plan cuts down on stress.

i agree that once you find a team of trustworthy drs who listen to you and validate your dx's and sx's you will be a step ahead. sometimes it takes a while to find the right people. just remember that the head of the team is....YOU.

get copies of all the tests you've had and the mri's etc. so that if you see others drs you can bring your records with you. it's a good idea to start a medical record on yourself. sometimes for other drs, sometimes for taxes etc.

good luck and please keep us posted.

KENTUCY...welcome to NT.
it may be a good idea to start a separate thread and introduce yourself. you will probably get more responses that way. i was dx'd only on my mri results. i had brain and c-spine with and without contrast. a bit later i had an LP and had 2 O-bands. that's considered + for MS. keep searching for answers. sometimes a 2nd opinion is a wise move.

hope to hear more about both of you.