Thanks Sarah, Sally, Judy and Cheryl.

Judy, I was originally considering Fb actually, because she was also complaining about two spots that were close to her collar bones, on either side, as being painful to touch. I didn't really know how to test the right spots, but she did "seem" to be sore in the other "pressure point" places that I tried.

At that point I was thinking everything just seems to be hurting . . . but when I tested other places, she had no pain. She'd have had to literally read up on the pressure points to be as spot on as she was about the Fb symptoms.

So, Fb seemed to fit, I thought.

When I mentioned this to our GP, he was not impressed. He told me to stay off the internet, and said "You know these things take time ... hopefully a L-O-N-G time". My doctor is NEVER this abrasive with me (well, except when my MS denial went on for 14 yrs ), so I was a bit taken aback by his response. He went on to say that Fb is a dx when EVERYTHING else is ruled out and they can't find a reason for the symptoms. He said that even that dx would take time ...

But I still have Fb on my radar screen, as my sister has that. She also has syringomyelia, which causes similar symptoms to our severe spinal cord ones, but the rest of whatever is happening to her could only be explained by Fb . . . at least so far.

Someone sent me some information (by PM) on a shingles-like ailment, that sounds interesting too. My daughter has actually had chicken pox twice (once minor, once major), so I'm not sure if she is a candidate for this condition . . . but the symptoms sure seem to fit.

You are right Cheryl, kids bounce back better than adults. This daughter has had severe second degree burns (from boiling water), and she coped very well when that happened. This has been a bit too long of a process for her liking, but she has learned to tune much of it out.

Cherie