Originally Posted by CRPSbe

Hi,

I'm from Europe where awareness on RSD/CRPS is fairly non-existent.

I have RSD/CRPS for almost 14 years. I developed it due to a car accident where my knees hit the dash (chondromalacia patellae). It spread to my legs fully as I wasn't diagnosed for almost 3 years. There's a long history behind this that I won't bore you with, but it was *hell*.

Last year, the RSD/CRPS spread to my arms/hands spontaneously. I have no clue why.

My treatment consists of Neurontin (2700 mg/day), Buprenorphine pain patches and sublingual Buprenorphine for breakthrough pain. I am also undergoing treatment for my hands/arms, which consists of Calcitonine injections. They are able to keep things stable (so far, fingers crossed). My hands do twitch and hurt, but I'm keeping hope alive, hoping it won't progress to a further stage.

I was on this board years ago, but couldn't find my username & password (back then it was Braintalk communities), so I reregistered. Most of you won't remember me, I guess.

I am happy to be here nonetheless!

Hugs to all of you.