Quote:
Originally Posted by tjbird
I want to thank you all for your generous welcomes.  I broke my leg in June 2006, was diagnosed with RSD/CRPS on June 19, 2007. Now I have all kinds of issues, the latest (not confirmed by my pain centr yet) my primary DR said more than likely fibermialgia since I have the RSD and my medical history. I thought I had RSD of the bones  but after reading some of the symptoms I absolutly could not believe how much matched. One of the main reasons I am here is because my husband does not want to learn anything about what is wrong with me, I only have one friend who is sicker than me, I live in the mountains of VA where a shrink told me when I needed help with the depression "RSD, I've heard that it is a real bear". Needless to say I am in mental deficit  I have been hunting for guidence in answering my main question and maybe you all can help; What comes after "Life as I knew it is Over!" I am miserable, I try living one day at a time but that comes up with another day of pain.
Looking forward to hearing from you!
tjbird |
Hello and welcome to the site. There are a lot of good people here who have a lot of good advice and knowledge. Aintsobad has some very good tips about the doctors, mental health, exercise and friends. It is a difficult task getting your medical team together but one you won't regret. Your mental health is important my pain management phsycologist has been wonderful. He helps me to sort out medical treatments and legal matters. Exercise is a must I water walk at the YMCA. The most important part of my treatment plan is my God. I ask him every morning for the strenght and energy to face the days challenges and I pray every night for his peace that passes all understanding so I can sleep. I have full body RSD from the top of my head to the tip of my toes and it effects my lungs and heart. God has never failed me his grace is amazing. Once I let God have control everything started to fall into place.
Ask your husband to help you by taking the time to listen. You are in the for worse part of For better or worse. You didn't ask for this health condition but you need him to understand what is happening to your body. As your health causes changes in your life it also causes changes in your relationships. My pain management physcologist told me there are 3 types of husbands:
The ones that leave
The ones that stay and act as if nothing is wrong
The ones that stay and help in anyway they can.
I hope your husband can be turned around to be number 3. Your health has put a huge stress on your relationship listen to each other. He sees you hurting and wants to help but feels helpless. I wish you the best I went through this with my husband he turned out to be the one that stayed and helps.
May God bless you,
Sbowling