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Old 03-29-2009, 03:44 PM
info hungry info hungry is offline
Junior Member
 
Join Date: Mar 2009
Posts: 41
15 yr Member
info hungry info hungry is offline
Junior Member
 
Join Date: Mar 2009
Posts: 41
15 yr Member
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Quote:
Originally Posted by screwballpookie View Post
Hey sbowling,

Thanks for the reply. It does help to have support and I feel you guys are the only support I have. My husband don't want to deal with it. All we do is fight over finances due to us having to pay for meds which costs a bundle a month. I am trying to get my attorney to respond but it seems lately he is to preoccupied with his other cases. I keep calling him and still get no response so that sure don't help with my husband and I fighting. I am trying so hard to keep up to everything and it feels that I can't do it anymore. My daughter which is 13 yrs. don't even want to spend time with me. She would rather be on the phone or computer. I can't seem to get anyone to help support me and I cry alot during the days because I feel so alone. Yes I am seeing a psychiatrist once every two weeks and they have diagnosed me with PTSD. I try to get through everything, but it is so hard. I can't get much help from my daughter or my husband. I am so worried about my legs. I have no diagnosis, but I think I know what is wrong with them. I am still trying to get my attorney to talk to me about a neurologist, but I keep getting know reply from him. I feel like I am so alone in this world and sometimes I just can't take it anymore. Sometimes I scream into a pillow during the day when i am alone. I am alone alot. My daughter goes to school at 7:40 am and gets home at 4:00pm. My husband is a truckdriver and gets home when he gets home.So I guess being alone this much doesn't help me at all. We are just so short on money that I can't really go for drives because my husband says I am wasting gas so when I do go shopping I spend sometimes 4 hours at wal-mart just looking so I can be out of the house. My husband gets mad at me for that because I don't need to be gone that long. I realize he is under stress as well with being the only one bringing the income in, but he has to realize I am trying as well. I tried to get a job when I lost my job over this injury for one and a half years and gave up because I was getting no where except putting myself further into depression. At that time I still had no idea what was wrong with me it took the docs 3 years to diagnose me with rsd and by then it was to late to even try and put it in remission. I went back to school and got an AA degree in Health Information Technology, but look at me still today. I still can't get a job so I just gave up. I didn't know what else to do. I have been trying to get disability and have been denied 4 times. I got an attorney to help me appeal it and social security said that we were 5 days late at appealing so we have to start all over. So I just got done filling out 2 packets for them and by the time I was done I was in so much pain, but I kept pushing myself because I knew it was to try and help get the stress off my husband. Now I sit and wait again. In the meantime I still have no idea what is wrong with my legs all I know is they hurt,are weak and tired. They give out from underneath me for no reason at all so that is why I am using my special crutch that was made for me after having my last knee surgery. I don't have to put any weight on my hand, but the grasping is something that really hurts. The doc said to use a cane or a walker, but I feel i will still have the same problem with grasping. I am just so scared of being in a wheelchair at such a young age. I am 36 and I don't think I am really ready to be in a wheel chair. I don't know how to deal with my legs right now let alone try to deal with a wheel chair. I have not said anything to the doc about grasping the crutch because I am afraid he will want to put me in a wheel chair. How do I deal with all this pressure? Do I say something to the doc and pray to god there is another way so I don't have to be in a wheel chair or do I just keep my mouth shut? Please help. I am so scared and confused. What do I do?

Thanks for taking the time to read about my babbling. Sometimes I just don't know when to stop. I am sorry.

Sincerely,
Tracy Tracy(screwballpookie)
Tracy, I feel so bad that your having such a bad time. All of the feelings you are having are very normal. RSD is tragic. It changes everything. It can make us feel like we are not giving our share. You can only do what you can do. When my spouse (who is very supportive) has a bad moment with our situation first I let him have those moments and then I try to explain how stress is a trigger so we have to do the best we can together. I hope you can get your family to understand about rsd. The support here will be great for venting. Everyone here listens, so don't feel bad about writing a lot. It is also very therapeutic to write. There are a lot of friends here. Take care keep trying ways to lower your stress because it becomes a vicious cycle.
Hang in there. Lots of hugs to youXX

Debbie
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