I have finally been approved by my insurance to see Dr. Timothy Lubenow at Rush University in Chicago (my local docs have given up on me). He's done a lot of research into RSD and treats many patients. I will ask him about organ donation when I'm there on April 8th (I promise I won't forget!!) and I'll let you know what he says.

BTW, any one else on here ever seen Dr. Lubenow???? If so, what did you think???? Thanks all!!!