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Old 03-30-2009, 06:11 PM
wonder wonder is offline
Junior Member
 
Join Date: Mar 2009
Posts: 6
15 yr Member
wonder wonder is offline
Junior Member
 
Join Date: Mar 2009
Posts: 6
15 yr Member
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Thank you.

I am not sure if I get ptosis or not. Same with other facial drooping. I may try to take pics. If I have it, it's mild apparently. I know parts of my face feel a lot weaker and people think I am almost sulky looking, but I'm just tired out there.

Yes PFT is something I am considering too. I think I'll eventually get one "just in case" it shows something, but I sort of doubt it will, and I am prepared for them to tell me that stuff about not putting in enough effort. I feel like if they were trying to test me, I would be exhausted in about 30 seconds and start to feel like passing out.

The neuro I saw was an expert in this stuff, but I think I was horrible about explaining my symptoms, and I think he really jumped to the conclusion that I did not have a neuromuscular disease. And he was very big on test results and I have a negative/clean EMG and NCV and AChR. However I have reasons to believe that my EMG and NCV results would be different if I did them again in the future, although I am not too sure of that. It seems to make more sense to do SFEMG or repetitive stim if I have those options (and LFT). Part of my reason is that EMG was testing the major muscles of my legs and I think they would only see the problem in other areas. I'm told they can test shoulders and wrists.
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