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Old 03-30-2009, 11:05 PM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
Heart Oh, Kristie - I'm sorry

Have they or are they doing some follow up tests? Do you have Wilson's in your family? Will they do DNA tests?

I'm here for you, if you need to bounce ideas, need help researching or whatever else I can do - wish I could be there to give you a BIG HUG!!
but I guess this has to do .

Talk to you soon.


Quote:
Originally Posted by nemsmom View Post
I have been going over blood work results because one doctor was worried about a low copper level and I was trying to find anything else to back it up. One of my other doctors actuall wants me to become a doctor since I'm begining to understand all of this from going through it all.

So anyway it looks like they are now watching for Wilson's Disease. Which would explain some of my symptoms, some that I have never listed as a symptom because I just thought everyone has a problem with it to some degree. But it wouldn't take away the MS diagnosis or the POTS diagnosis.

Oh and it still wouldn't explain my weak spells, so then we are still looking at some kind of neuromuscular disease (possibly MG, which would be why I came here in the first place). Are they ever going to quit finding new things with me? I'm so sick of adding to my list of diseases.

Okay sorry for whinning, just had to get that out. Wilson's is treatable through medicine and diet. But it would meen I have to give up nuts and CHOCOLATE! What a crime. They say that after initial treatment they may be okay occasionally, but I don't think that meens at least twice a week.

Oh and they say to not eat organ meat or shellfish, but that's okay I've been on that diet my whole life.

I hope everyone is having a good day, talk to ya later.

Kristie
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