Thread: New and Lost
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Old 03-31-2009, 03:59 AM
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hello Jennelle and Welcome to Neurotalk - you will meet many great people here who I am sure will be more than happy to help you if they can!!!

I am SO sorry to hear that you are going through all of this right now and really hope that things start getting better for you real soon!!! Please know that you aren't alone and that I DO understand some of what you are going through!!!!

It is extremely important that you try and find a doctor that understands RSD. It took me about 5 months to finally see a doctor that understood RSD and during that time, I was just getting worse and worse. I see quite a few doctors to treat my RSD however the main doctor that treats me is a Pain Management Doctor. I also see a Neurologist for the Myoclonic spasms and Dystonia's I have, Physical Therapist's, GP, Orthopaedic every now and then and an Orthotics specialist for my splint.

If you aren't happy with your doctor, please try and find another one!!!!! I KNOW it is extremely frustrating trying to find another doctor but it's really important that you get a doctor that you are comfortable with and that can help try and treat you!!! From what I understand, most RSD'ers see a Pain Management Doctor as they are usually the best doctor to treat RSD - a PM Doctor was the doctor that diagnosed me and has been treating me for nearly 2 years now!!

There are quite a few people on the forum that have had a Sympathectamy. From what I understand now they, they are NOT recommended at all as in more cases than not, they just aggrivate the RSD and make it worse and the pain doesn't go away. Also from what someone told me (i'm not sure if this is true or not though), if you have the Sympathetic Nerve cut then there is no chance of finding a permanent cure even if a cure becomes available as the nerve affected isn't there anymore. Please, please ask your doctor lots of questions before you decide to go ahead with any drastic surgery like this and ask people that have the procedure what it is like and if it helped!!! No-one can force you into doing anything - it is YOUR decision and you know your body better than anyone!!!!

Take care and know that you are in my thoughts and prayers. If you need anything, I am here for you!! I hope you feel better soon!!

Alison
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