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Member
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Join Date: Jun 2007
Location: NJ
Posts: 228
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Member
Join Date: Jun 2007
Location: NJ
Posts: 228
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I understand - I have been diagnosed, undiagnose, and re-diagnosed. I have doctors tell me that I am not sick. That I just need to exercise.
All my EMGs but one have been normal, and I have an abnormal SFEMG (go figure), all pretty much normal blood tests (but they just ran some more).
I do have overlapping disorders (endocrine nightmare city) and so many of the docs just write me off. But I know many people in my boat (sad) and only one other is as bad or worse than I am. So I am pretty sure that it is not all the endocrine stuff, but something else. Some doctors agree that I am a mix or that the endocrine is hiding things (steroids do that).
Neuromuscular is very hard. I don't know if you can get clean results on everything. That expert must only have a couple of patients.
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
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