Thread: New and Lost
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Old 03-31-2009, 09:33 AM
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dreambeliever128 dreambeliever128 is offline
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Join Date: Nov 2006
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Janelle,

Ali, Mike, and Mary told you quite a bit there in their post. I agree with all they are saying.

I would definatly do the least invasive at first. The SCS works for a lot of people but I believe you see almost or more that it doesn't. I have met 3 people in my area that had them in. Larry had his taken out, Jenny only had hers on a month and it's turned off but they won't take it out, and the third said she'd had it in for about 10 years and it helped but started causing a spread. I see a lot on the forum that don't do good with it. So definatly seek every other avenue before you do the SCS.

As far as the Sympethectmy, I didn't think they were doing them anymore. I know Diana has had one years ago but not many come on that have had them done.

Physical Therapy with the right Physical Therapist is good. Some people have used Hypeberics treatments.

As far as Drs. I saw 4 Neurologist and about 5 PM's and none of them were worth their weight in salt. My PCP deals with mine and I think that Anesteolgist are good at blocks more so then PM Drs.

I am glad you found the forum. You will get a lot of help here. I made friends on the old forum years ago that actually saved my life by talking to me on the phone all hours of the night so I know you will get the support you need here.

You can't have MRI's with SCS's in I don't think either. I have a different implant and can't have an MRI and let me tell you, my Dr. called all over the state thinking there might be an MRI machine made just for patients with these things in them and there isn't.

These are just my opinions. I know others come on and will have some good ideals for you.

Ada
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"Thanks for this!" says:
ali12 (03-31-2009)