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Old 03-31-2009, 01:09 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Default Hello Wonder!

I know in MY case I can be "normal" one minute and 5 minutes later I am wiped OUT!!!! No joke!

I know before I was dx'ed I would want to do stuff but just couldn't - couldn't.......I wasn;t being lazy and it wasn;t in my head......

Keep pushing through...most "specialists" have lost their humanity.......

Erin
Quote:
Originally Posted by wonder View Post
This is true right? Some days or hours the MG person could have no visible signs of weakness. So even an experienced doc would not see eye drooping, or anything else wrong in a physical exam. This doc was seeing me while I was on Mestinon, so of course he didn't find anything wrong!

Anyway, I'm not sure if my weakness and fatigue are MG or just Fibromyalgia or something else. It seems normal GIVEN the "fibro" stuff. That if it's difficult to do X or Y, then if I do them (push myself), I'll be more weak and tired afterwards (and it could last days). Like a normal person running miles, but all I did was walk two blocks. Hm, I don't know if I am writing any of this down properly. I guess there is a difference and the reason I think I could have MG (with the fibro) is that I'll get weak so fast, but a little bit of rest can really reset it. (In fact, I think my fibro came out of having MG.) I guess what I am trying to do is distinguish which symptoms would go with which autoimmune illness and which might just be normal fatigue (or due to sleep apnea or anxiety or other things).
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